Quantifying CFTR Ion Channel Function with Sweat Tests

March 1, 2019

Meagan Shinbashi, a researcher in Dr. Jeffrey Wine’s Cystic Fibrosis Research Laboratory at Stanford, demonstrates the utility of sweat tests in providing a near-linear readout of CFTR function. Meagan explains the importance of sweat tests in both a historical context as well as the future of these tests in monitoring the effectiveness of new treatments such as Triple Combination therapies and CRISPR Cas-9. Meagan further discusses how sweat tests can potentially be of use for patients with rare mutations in years to come.

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Quantifying CFTR Ion Channel Function with Sweat Tests (Audio)

March 1, 2019

Meagan Shinbashi, a researcher in Dr. Jeffrey Wine’s Cystic Fibrosis Research Laboratory at Stanford, demonstrates the utility of sweat tests in providing a near-linear readout of CFTR function. Meagan explains the importance of sweat tests in both a historical context as well as the future of these tests in monitoring the effectiveness of new treatments such as Triple Combination therapies and CRISPR Cas-9. Meagan further discusses how sweat tests can potentially be of use for patients with rare mutations in years to come.

CF Fitness and Strength Building: An Interview with Taylor Lewis

January 28, 2019

Taylor Lewis, MS, runs the Cystic Fibrosis Fitness Institute in Northern California, where he helps develop personalized exercise and fitness programs for individuals with CF. He has worked with hundreds of people - both virtually and in person - to help them to build strength and endurance for the CF road. He is also an instructor through CFRI's Breathe In ~ Work Out CF Wellness Initiative, through which he teaches an online "Knowledge in Motion" class.

Filmed by Brandon Delgado.
Sound by Alana Ocampo

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

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CF Fitness and Strength Building: An Interview with Taylor Lewis (Audio)

January 28, 2019

Taylor Lewis, MS, runs the Cystic Fibrosis Fitness Institute in Northern California, where he helps develop personalized exercise and fitness programs for individuals with CF. He has worked with hundreds of people - both virtually and in person - to help them to build strength and endurance for the CF road. He is also an instructor through CFRI's Breathe In ~ Work Out CF Wellness Initiative, through which he teaches an online "Knowledge in Motion" class.

Filmed by Brandon Delgado.
Sound by Alana Ocampo

CF Community Voices is generously sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

Advanced Lung Disease in Children - Carol Conrad, MD

November 13, 2018

Carol Conrad, MD, is the Medical Director of the Pediatric Lung and Heart-Lung Transplant Program, and Associate Professor of Pediatrics at Stanford University. While the number of children with cystic fibrosis requiring a double lung transplant are declining due to new therapies, each year, several children experience advanced end-stage lung disease requiring transplant. In this presentation, Dr. Conrad shares the history of pediatric transplant, the challenges and outcomes, and the future of transplant.

Filmed by Brandon Delgado and Alana Ocampo.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA. 

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Advanced Lung Disease in Children - Carol Conrad, MD (Audio)

November 13, 2018

Carol Conrad, MD, is the Medical Director of the Pediatric Lung and Heart-Lung Transplant Program, and Associate Professor of Pediatrics at Stanford University. While the number of children with cystic fibrosis requiring a double lung transplant are declining due to new therapies, each year, several children experience advanced end-stage lung disease requiring transplant. In this presentation, Dr. Conrad shares the history of pediatric transplant, the challenges and outcomes, and the future of transplant.

Filmed by Brandon Delgado and Alana Ocampo.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Gilead Sciences and Chiesi USA. 

Pound for CF Fitness - Amy Rad (Video)

October 30, 2018

Amy Rad teaches Pound Fitness, an exercise class which integrates the use of drumsticks and high-energy music to encourage a fun and effective workout. Amy's class is part of CFRI's Breathe In ~ Work Out CF Wellness Initiative, a series of online classes that promote physical wellness and community connection with others impacted by CF.

Filmed by Brandon Delgado and Alana Ocampo.

CF Community Voices is funded by grants from Vertex Pharmaceuticals, Chiesi USA and Gilead Sciences

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Pound for CF Fitness - Amy Rad - Audio

October 30, 2018

Amy Rad teaches Pound Fitness, an exercise class which integrates the use of drumsticks and high energy music to encourage a fun and effective workout. Amy's class is part of CFRI's Breathe In ~ Work Out CF Wellness Initiative, a series of online classes that promote physical wellness and community connection with others impacted by CF.

Filmed by Brandon Delgado and Alana Ocampo.

CF Community Voices is funded by grants from Vertex Pharmaceuticals, Chiesi USA and Gilead Sciences

CFRI's Breathe In ~ Work Out CF Wellness Initiative is funded through a Circle of Care grant from Vertex Pharmaceuticals.

“Ask The Experts” Panel: 2018 Conference Presenters - Video

August 29, 2018

Manu Jain, MD, Reid D'Amico, PhD, Richard Moss, MD, Chelsea Toth, DSW, and Elaine Chen, MD, all conference presenters at CFRI's 31st National CF Family Education Conference, participate on a panel to answer questions from conference attendees.

This presentation was made on August 5, 2018, at CFRI's 31st National Cystic Fibrosis Family Education Conference.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and the Boomer Esiason Foundation.

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Advances in Lung Transplantation - Rupal Shah, MD and Jasleen Kukreja, MD

August 29, 2018

Dr. Rupal Shah and Dr. Jasleen Kukreja, both of UC San Francisco, provide a fascinating presentation reviewing the transplantation process, from the initial evaluation to post-transplant outcomes, for recipients with cystic fibrosis, and providing a fascinating overview of the newest innovations in lung transplant care for patients with cystic fibrosis.

This presentation was made on August 4, 2018, at CFRI's 31st National Cystic Fibrosis Family Education Conference.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, and the Boomer Esiason Foundation.

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