Hemoptysis and CF - Paul Mohabir, MD - Video

March 29, 2018

Paul Mohabir, MD, Clinical Professor and Director of the Adult Cystic Fibrosis Program at Stanford, provides a comprehensive overview of hemoptysis and CF, including epidemiology, occurrance rates, and treatment options. Hemoptysis - the expectoration of blood - occurs with many individuals with CF, and Dr. Mohabir provides information that is vitally important whether or not this has been experienced.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

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Hemoptysis and CF - Paul Mohabir, MD Audio

March 29, 2018

Paul Mohabir, MD, Clinical Professor and Director of the Adult Cystic Fibrosis Program at Stanford, provides a comprehensive overview of hemoptysis and CF, including epidemiology, occurrance rates, and treatment options. Hemoptysis - the expectoration of blood - occurs with many individuals with CF, and Dr. Mohabir provides information that is vitally important whether or not this has been experienced.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

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Staying Positive through Declining PFTs: My Pre-Double Lung Transplant Experience - Elyse Elconin Goldberg - Video

March 28, 2018

As a person with CF who was physicially active for decades, the shift to accomodate declining lung function was challenging for Elyse Elconin Goldberg. In this insightful and inspiring video podcast, Elyse shares the strategies she used to remain positive - and as active as possible - as she awaited her double lung transplant.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

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Staying Positive through Declining PFTs: My Pre-Double Lung Transplant Experience - Audio

March 28, 2018

As a person with CF who was physicially active for decades, the shift to accomodate declining lung function was challenging for Elyse Elconin Goldberg. In this insightful and inspiring audio podcast, Elyse shares the strategies she used to remain positive - and as active as possible - as she awaited her double lung transplant.

Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences. Additional support for this podcast was provided by Novartis.

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Personal Perspectives from a CF Respiratory Therapist

March 6, 2018

Kristin Shelton, RCP, has been a respiratory therapist for over 30 years, and had worked with CF patients for the majority of that time. In this video, Kristin shares her personal thoughts and perspectives on working with members of the CF community, including what inspires her, what has been challenging, and what her hopes are for the future.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

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Respiratory Therapy Options & Cleaning Your Nebs

March 6, 2018

Kristin Shelton, RCP, respiratory therapist at Lucile Packard Children's Hospital Stanford, provides an overview of options for respiratory therapy, as well as the numerous options for sterilizing one's nebulizers.

 

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

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Personal Perspectives from a CF Respiratory Therapist (Audio)

March 6, 2018

Kristin Shelton, RCP, has been a respiratory therapist for over 30 years, and had worked with CF patients for the majority of that time. In this video, Kristin shares her personal thoughts and perspectives on working with members of the CF community, including what inspires her, what has been challenging, and what her hopes are for the future.

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

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Respiratory Therapy Options & Cleaning Your Nebs (Audio)

March 6, 2018

Kristin Shelton, RCP, respiratory therapist at Lucile Packard Children's Hospital Stanford, provides an overview of options for respiratory therapy, as well as the numerous options for sterilizing one's nebulizers.

 

CF Community Voices is sponsored by Vertex Pharmaceuticals, Chiesi USA, and Gilead Sciences.

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Coping with Your Child’s Hospitalization: Tips From a Personal Expert

January 31, 2018

Gina Serrato, mother of a child with cystic fibrosis (CF) shares a variety of tips and perspectives on coping with her daughter's multiple hospitalizations. From making her daughter feel safe, helping her daughter to get a good nights sleep, dealing with blood draws, to working with the medical team, Gina shares a wealth of information that is likely to be helpful to other parents in this situation.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA

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Lessons From My CF Journey: A Mother’s Perspective

January 31, 2018

Gina Serrato shares vital life lessons she has learned in navigating the cystic fibrosis journey with her daughter. Lessons include: Let go of judgements; Cling to what is constant; Live in the power of now; Embrace the challenges; Surrender and accept things as they are, not as you wish them to be; Live in a state of gratitude and appreciation; Be resilient. Gina's life lessons can be widely applied whether one is coping with a CF diagnosis or any other life challenge.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA

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