Matthew Video

November 15, 2017
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Matthew Audio

November 15, 2017
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CF Advocacy: The Personal & The Political with Jacob Fraker

October 25, 2017

Jacob Fraker, CFRI's Legislative Analyst who lives with CF, discusses the development of his political awareness and advocacy efforts on behalf of the CF community, rare disease community and LGBTQ community.

Watch Now:

CF Advocacy: The Personal & The Political with Jacob Fraker

October 25, 2017

Jacob Fraker, CFRI's Legislative Analyst who lives with CF, discusses the development of his political awareness and advocacy efforts on behalf of the CF community, rare disease community and LGBTQ community.

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My Personal CF Journey - From Infancy to Advocacy

September 29, 2017

Jacob Fraker shares his life journey with CF. Currently working on his social work degree, Jacob is serving as CFRI's legislative analyst. Jacob shares the factors that motivated him to focus on his health and pursue his goals of service and advocacy for those with CF, the LGBTQ community, and others who need a voice.

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Proteostasis Therapeutics, and Genentech.

Watch Now:

My Personal CF Journey - From Infancy to Advocacy

September 29, 2017

Jacob Fraker shares his life journey with CF. Currently working on his social work degree, Jacob is serving as CFRI's legislative analyst. Jacob shares the factors that motivated him to focus on his health and pursue his goals of service and advocacy for those with CF, the LGBTQ community, and others who need a voice.

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Proteostasis Therapeutics, and Genentech.

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Living and Thriving with a G-Tube - Darcy Ogle

August 31, 2017

Darcy Ogle's daughter has cystic fibrosis and has had a g-tube since she was an infant, In this podcast, Darcy describes her experience through the years, and the benefits she has seen for her daughter. Darcy provides encouragement, as well as helpful tips for others.

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Living and Thriving with a G-Tube - Darcy Ogle - Audio

August 31, 2017

Darcy Ogle's daughter has cystic fibrosis and has had a g-tube since she was an infant, In this podcast, Darcy describes her experience through the years, and the benefits she has seen for her daughter. Darcy provides encouragement, as well as helpful tips for others.

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