Living and Thriving with a G-Tube - Darcy Ogle

August 31, 2017

Darcy Ogle's daughter has cystic fibrosis and has had a g-tube since she was an infant, In this podcast, Darcy describes her experience through the years, and the benefits she has seen for her daughter. Darcy provides encouragement, as well as helpful tips for others.

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Living and Thriving with a G-Tube - Darcy Ogle - Audio

August 31, 2017

Darcy Ogle's daughter has cystic fibrosis and has had a g-tube since she was an infant, In this podcast, Darcy describes her experience through the years, and the benefits she has seen for her daughter. Darcy provides encouragement, as well as helpful tips for others.

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PART 2: Mind Body Therapies in Cystic Fibrosis - John Mark, MD - Audio

August 30, 2017

John Mark, MD, is a pediatric pulmonologist at Lucile Packard Children’s Hospital at Stanford, where he utilizes non-conventional approaches with individuals who have chronic illnesses such as cystic fibrosis. This presentation, given at CFRI's 30th National Cystic Fibrosis Family Education Conference, provides a comprehensive overview of adjunctive therapies that can enhance the cystic fibrosis medical regimen.

Conference sponsored by Genentech, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis.

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PART 1: Mind Body Therapies in Cystic Fibrosis - John Mark, MD - Audio

August 30, 2017

John Mark, MD, is a pediatric pulmonologist at Lucile Packard Children’s Hospital at Stanford, where he utilizes non-conventional approaches with individuals who have chronic illnesses such as cystic fibrosis. This presentation, given at CFRI's 30th National Cystic Fibrosis Family Education Conference, provides a comprehensive overview of adjunctive therapies that can enhance the cystic fibrosis medical regimen.

Conference sponsored by Genentech, Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis.

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PART 2: Belonging and Identity: Growing Up with CF - Isa Stenzel Byrnes, LCSW, MPH Audio

August 30, 2017

Isa Stenzel Byrnes, social worker, co-author of the Power of Two, identical twin, adult with CF, double lung transplant recipient, Transplant Games medalist, and subject of a documentary film, shared her deep insights and inspiring perspectives on developing a sense of identity and belonging as a person with CF. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 30, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

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PART 1 Belonging & Identity: Growing Up with Cystic Fibrosis - Isa Stenzel Byrnes, LCSW, MPH - Audio

August 30, 2017

Isa Stenzel Byrnes, social worker, co-author of the Power of Two, identical twin, adult with CF, double lung transplant recipient, Transplant Games medalist, and subject of a documentary film, shared her deep insights and inspiring perspectives on developing a sense of identity and belonging as a person with CF. This presentation was part of CFRI's 30th National Cystic Fibrosis Family Education Conference on July 30, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

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What to Expect When You’re Expectorating: The Bugs and Drugs of CF - Lucas Hoffman, MD, PhD (Audio)

August 30, 2017

Lucas Hoffman, MD, PhD, from the University of Washington and Seattle Children’s Hospital, in Seattle, Washington, a noted expert on pathogens commonly found in the CF lung, discusses what is known - and not known - about these pathogens and their potential treatment. The full title of his talk: What to Expect When You're Expectorating - The Bugs and Drugs of CF Respiratory Infections. This presentation was made on July 29, 2017, at CFRI's 30th National Cystic Fibrosis Family Education Conference.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

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Lessons from a CF Cornerman - Ray Poole: Audio

August 30, 2017

Ray Poole, author of "Lessons from a CF Cornerman," shares the inspiring story of his wife's battle with cystic fibrosis, and the life saving double lung transplant that has changed their lives. This presentation was given at CFRI's 30th National Cystic Fibrosis Family Education Conference on July 28, 2017.

Conference sponsored by Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, the Boomer Esiason Foundation, and Novartis Pharmaceuticals.

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