Coping with Your Child’s Hospitalization: Tips From a Personal Expert

January 31, 2018

Gina Serrato, mother of a child with cystic fibrosis (CF) shares a variety of tips and perspectives on coping with her daughter's multiple hospitalizations. From making her daughter feel safe, helping her daughter to get a good nights sleep, dealing with blood draws, to working with the medical team, Gina shares a wealth of information that is likely to be helpful to other parents in this situation.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA

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Lessons From My CF Journey: A Mother’s Perspective

January 31, 2018

Gina Serrato shares vital life lessons she has learned in navigating the cystic fibrosis journey with her daughter. Lessons include: Let go of judgements; Cling to what is constant; Live in the power of now; Embrace the challenges; Surrender and accept things as they are, not as you wish them to be; Live in a state of gratitude and appreciation; Be resilient. Gina's life lessons can be widely applied whether one is coping with a CF diagnosis or any other life challenge.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA

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Coping with Your Child’s Hospitalization: Tips From a Personal Expert (Audio)

January 31, 2018

Gina Serrato, mother of a child with cystic fibrosis (CF) shares a variety of tips and perspectives on coping with her daughter's multiple hospitalizations. From making her daughter feel safe, helping her daughter to get a good nights sleep, dealing with blood draws, to working with the medical team, Gina shares a wealth of information that is likely to be helpful to other parents in this situation.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA

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Lessons From My CF Journey: A Mother’s Perspective (Audio)

January 31, 2018

Gina Serrato shares vital life lessons she has learned in navigating the cystic fibrosis journey with her daughter. Lessons include: Let go of judgements; Cling to what is constant; Live in the power of now; Embrace the challenges; Surrender and accept things as they are, not as you wish them to be; Live in a state of gratitude and appreciation; Be resilient. Gina's life lessons can be widely applied whether one is coping with a CF diagnosis or any other life challenge.

Sponsored by Vertex Pharmaceuticals, Gilead Sciences, and Chiesi USA

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Research Participation: The Basics and Beyond - Colleen Dunn, RRT (Video)

January 5, 2018

Colleen Dunn, RRT, CCRC, Translational Research Manager at Stanford Cystic Fibrosis Center, provides a comprehensive and inspirational overview of clinical trial participation. From the earliest trials for Pulmozyme to the latest trials for CFTR modulators, Ms. Dunn has been a part of numerous clinical trials. Her podcast provides a compelling and uplifting perspective on participation in CF research.

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Genentech, and Proteostasis Therapeutics.

Watch Now:

Research Participation: The Basics and Beyond - Colleen Dunn, RRT (Audio)

January 5, 2018

Colleen Dunn, RRT, CCRC, Translational Research Manager at Stanford Cystic Fibrosis Center, provides a comprehensive and inspirational overview of clinical trial participation. From the earliest trials for Pulmozyme to the latest trials for CFTR modulators, Ms. Dunn has been a part of numerous clinical trials. Her podcast provides a compelling and uplifting perspective on participation in CF research.

Sponsored by Vertex Pharmaceuticals, Chiesi USA, Gilead Sciences, Genentech, and Proteostasis Therapeutics.

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Pseudomonas 101 - Karen Hardy MD: Video

December 8, 2017

Karen Hardy, MD offers a comprehensive overview of Pseudomonas aeruginosa, including new therapies in the pipeline to treat this pathogen which so commonly colonizes the CF airway.

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Pseudomonas 101 - Karen Hardy MD: Audio

December 8, 2017

Karen Hardy, MD offers a comprehensive overview of Pseudomonas aeruginosa, including new therapies in the pipeline to treat this pathogen which so commonly colonizes the CF airway.

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