The CFRI CF Community Voices Podcast
Pride! Celebrating Our CF Community

Pride! Celebrating Our CF Community

July 7, 2021

Members of the cystic fibrosis and LGBTQIA community share their experiences and perspectives on life with CF, the challenges and deep rewards of coming out, and the importance of finding community. Pride Month is in June; Pride is year round.

Sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, Gilead Sciences, and Viatris.

Film edited by Brandon Delgado.


Pride! Celebrating Our CF Community (Audio)

Pride! Celebrating Our CF Community (Audio)

July 7, 2021

Members of the cystic fibrosis and LGBTQIA community share their experiences and perspectives on life with CF, the challenges and deep rewards of coming out, and the importance of finding community. Pride Month is in June; Pride is year round.

Sponsored by Vertex Pharmaceuticals, Genentech, Chiesi USA, Gilead Sciences, and Viatris.

Film edited by Brandon Delgado.

Cystic Fibrosis in the Asian Community - Sriram Vaidyanathan, PhD

Cystic Fibrosis in the Asian Community - Sriram Vaidyanathan, PhD

June 23, 2021

In this informative podcast, Dr. Sriram Vaidyanathan discusses the incidence of cystic fibrosis among the Asian community, and research which indicates that CF incidence rates are far higher among South Asians than East Asians. Thanks to research conducted at Stanford, there is further evidence of the diversity of the cystic fibrosis community and the need for greater awareness among underrepresented communities and the medical community.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

Sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences and Vertex Pharmaceuticals.

Edited by Brandon Delgado.


Cystic Fibrosis in the Asian Community - Sriram Vaidyanathan, PhD (Audio)

Cystic Fibrosis in the Asian Community - Sriram Vaidyanathan, PhD (Audio)

June 23, 2021

In this informative podcast, Dr. Sriram Vaidyanathan discusses the incidence of cystic fibrosis among the Asian community, and research which indicates that CF incidence rates are far higher among South Asians than East Asians. Thanks to research conducted at Stanford, there is further evidence of the diversity of the cystic fibrosis community and the need for greater awareness among underrepresented communities and the medical community.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

Sponsored by Chiesi USA, Genentech, Viatris, Gilead Sciences and Vertex Pharmaceuticals.

Edited by Brandon Delgado.

Exhale: Hope, Healing & David Weill’s Life in Transplant

Exhale: Hope, Healing & David Weill’s Life in Transplant

June 8, 2021

David Weill, MD, formerly the director of Stanford's lung transplant program, discusses his insightful memoir, which presents an inside look at the world of high-stakes medicine and his recognition that he needed to step away from the front lines. Dr. Weill shares select readings from the book and responds to many viewer questions.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

Sponsored by Chiesi USA, Viatris, Genentech, Gilead Sciences, and Vertex Pharmaceuticals.


Exhale: Hope, Healing & David Weill’s Life in Transplant (Audio)

Exhale: Hope, Healing & David Weill’s Life in Transplant (Audio)

June 8, 2021

David Weill, MD, formerly the director of Stanford's lung transplant program, discusses his insightful memoir, which presents an inside look at the world of high-stakes medicine and his recognition that he needed to step away from the front lines. Dr. Weill shares select readings from the book and responds to many viewer questions.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

Sponsored by Chiesi USA, Viatris, Genentech, Gilead Sciences, and Vertex Pharmaceuticals.

Diversity, Awareness, Inclusion: Cystic Fibrosis in the South Asian Community (Video)

Diversity, Awareness, Inclusion: Cystic Fibrosis in the South Asian Community (Video)

May 26, 2021

Cystic fibrosis impacts people of all races and ethnicities. While more common among people of European descent, it is estimated that 1 in 10,000 people of South Asian origin have CF, while exponentially more are carriers. Due to the misperception that CF does not occur within the South Asian community, misdiagnoses and late diagnoses are common. In this film, members of CFRI's community share their experiences and expertise to raise vital CF awareness.

Part of CFRI’s Faces of CF ~ Diversity and Inclusion Program, this film was made possible through grants from Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech.

Film produced by Brandon Delgado.


Diversity, Awareness, Inclusion: Cystic Fibrosis in the South Asian Community (Audio)

Diversity, Awareness, Inclusion: Cystic Fibrosis in the South Asian Community (Audio)

May 26, 2021

Cystic fibrosis impacts people of all races and ethnicities. While more common among people of European descent, it is estimated that 1 in 10,000 people of South Asian origin have CF, while exponentially more are carriers. Due to the misperception that CF does not occur within the South Asian community, misdiagnoses and late diagnoses are common. In this film, members of CFRI's community share their experiences and expertise to raise vital CF awareness.

Part of CFRI’s Faces of CF ~ Diversity and Inclusion Program, this film was made possible through grants from Vertex Pharmaceuticals, Gilead Sciences, Chiesi USA, and Genentech.

Film produced by Brandon Delgado.

COVID-19, CF, INFECTION CONTROL, & VACCINES

COVID-19, CF, INFECTION CONTROL, & VACCINES

May 19, 2021

In this latest Q and A session, Rick Moss, MD, addresses questions related to vaccines, the recent CDC announcement regarding mask wearing, and what activities the CF community can feel safer participating in. This 15th podcast with Dr. Moss was recorded May 13, 2021.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

Thanks to our sponsors, Vertex Pharmaceuticals, Chiesi USA, Genentech, Viatris, and Gilead Sciences.


COVID-19, CF, INFECTION CONTROL, & VACCINES (Audio)

COVID-19, CF, INFECTION CONTROL, & VACCINES (Audio)

May 19, 2021

In this latest Q and A session, Rick Moss, MD, addresses questions related to vaccines, the recent CDC announcement regarding mask wearing, and what activities the CF community can feel safer participating in. This 15th podcast with Dr. Moss was recorded May 13, 2021.

If you watch this podcast episode, please let us know what you think at https://www.surveymonkey.com/r/TMRP766​

Thanks to our sponsors, Vertex Pharmaceuticals, Chiesi USA, Genentech, Viatris, and Gilead Sciences.

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